Our Story
Hello all, I'm Shannon! I have Cystic Fibrosis. I was diagnosed with CF at 5 months old with a positive sweat test. I was initially evaluated for a double lung transplant at Barnes-Jewish Hospital in St. Louis, MO in 2016 after a pretty decent decline in lung function. I wasn't quite ready to be listed at that time. I have done all the evaluation testing again in August 2023 to...
Continue Reading »Shannon Miller
Knoxville, TN
Transplant Type: Lung
Transplant Status: Waiting for Transplant
Goal: $65,000.00
Raised: $9,468 of $65,000 goal
Raised by 52 contributors
Updates
These Lungs Of Mine Have Not Been Cooperating…AT ALL!
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After my last post from March 9th, it's been a bit of a circus in terms of these lungs of mine. On March 31st, I had a really... Continue Reading »
First Quarter of 2025 Update
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It's already the beginning of March and quite a bit has already happened since January 1st. BACK SURGERY UPDATE: I had back surgery (laminectomy) to remove the nerve... Continue Reading »
A Busy 2024 Coming To An End
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At the beginning of the year we felt the year was dragging a little. Well, we shouldn't have said that because here we are in December trying to... Continue Reading »
Long Awaited Update!
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Oops, life got to lifing and I forgot to update here! I need to update about my pre-transplant check from the beginning of September, so here goes... First... Continue Reading »
Time for an update! (sorry it’s been so long)
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My apologies, It’s been a while since I’ve updated here. I’ve been holding steady for the most part lung wise. I’ve had my normal ups and downs but... Continue Reading »
It’s been a minute, last 6 months-Reader’s Digest version
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I update www.cfhappens.com with all my health updates and I totally forget to update here. I will get better at updating here!! Here is the last 6 months... Continue Reading »
Lung Transplant Evaluation Testing
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My regular CF doctor wanted me to be seen by my transplant hospital (Barnes-Jewish in St. Louis, MO) because I've had 2 hospital admissions this year and my... Continue Reading »
The Family Making Memories
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IV time yet again
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I had been having back lung pain for 2 weeks as of April 26th so I called my nurse to ask for a chest xray to make sure... Continue Reading »