Our Story

Ethan is the happiest, smiliest, goofiest little boy that you’ll ever meet. However, despite his constant smiles, he’s already endured more during his short life than most of us will in our entire lifetime. As he reaches the next stage of his journey, the need has become transparent. Ethan needs your help. Ethan’s initial diagnosis was given before he had even entered the world. Midway through his time in the...

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Updates

Ethan July 2022

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Ethan Spring 2022

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Strong at Heart!

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This weeks been an insane one, but our Ethy was cleared by his Cardiologist!! If you’ve been following along with Ethan’s life story, you might remember that a... Continue Reading »

CHOP Surgery Update

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I haven't had time or energy to post an Ethan Update for a few days now, so today I made a commitment to myself that I would drink... Continue Reading »

Prepping for Surgery

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This week is a big week for Ethan. This Thursday he will be admitted to Children's Hospital of Philadelphia in preparation for a large, multiprocedural surgery on Friday.... Continue Reading »

Ethan

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