Home sweet home!

I got home around noon today from the hospital which is record time for a release.  It helped that I didn’t have to wait for my IV antibiotics to be delivered to me at the hospital.  They delivered them to the house which is nice.  Let me recap Continue Reading »

Going inpatient

I have left a message with my nurse to say I would like to be admitted tomorrow.  Not that I would "like" to because who are we kidding, the hospital is not a fun place.  I have slept most of the weekend and am not much better.  Not that I really Continue Reading »

Still not feeling well

Today I had a check up since I'm not feeling better after 6 days of IV antibiotics.  My lung function was down again to .88L/31% FEV1.  I started a prednisone taper on Tuesday, starting at 60mg for 3 days, 40mg for 3 days, 20mg for 3 days then Continue Reading »

IV's it is!

I tried the oral antibiotics route and it didn't help.  I've been on them for about a week and a half.  All they have done is make for a yucky tummy.  With that said, I called my nurse for IV antibiotics.  I haven't felt good for too long. Continue Reading »

Threw in the towel, Antibiotics it is

Hey all!  It’s been a little while since I have updated.  I have not been feeling well for a few weeks.  I have been coughing more, especially at night.  I went for lung functions and to give a sputum sample today.  My lung function is down Continue Reading »

Pre-Transplant Clinic May 2019

Hello all!  I saw pre-transplant clinic in May.  It was a good check up.  My lung functions are holding steady at 35%.  I did the usual work up of blood work, 6 min walk, chest x-ray,lung functions, liver ultrasound, and saw the doctor.  The Continue Reading »