Our Story

Transplant Update February 5, 2017 - Erin had her transplant surgery today.  Keep the prayers coming and please see the blog posts for further details.  To get to the blog please click on the "Blog" link at the top of the page. Thanks to everyone for your support of Erin and her whole family. Erin Culbertson, daughter of Paul and Karla Culbertson of Green Bay, was born in 2001 and was diagnosed with Cystic Fibrosis....

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Updates

Excuses, excuses

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It’s been awhile since you’ve heard from me and while it’s partly because Erin likes to play this see-saw game of feeling good then feeling bad, I’m blaming... Continue Reading »

A second chance at life

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In my dreams my daughter is dancing.  In my dreams my daughter is singing. She is laughing and playing with her sisters, she is goofing around with her... Continue Reading »

Happy New Year!

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Today we celebrate Erin’s 11 month lungiversary and we have so much to be grateful for!  A year ago Erin found it difficult most days to walk 20... Continue Reading »

Forever and Always

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Life after transplant is a constant roller coaster.  Nervous butterflies in anticipation of the upcoming free fall are felt every time we await test results or Erin isn't... Continue Reading »

Sweet Sixteen

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What better way to celebrate your 16th birthday than with chocolate fondue and friends!  Six hours with six girlfriends and countless memories created.  A special breakfast with her... Continue Reading »

54..55…56…57…58…..?

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To say we are ALL breathing a little easier this weekend is an understatement. Erin's lung function on Monday was 59% and Friday's came in at 61%!!! After... Continue Reading »

Fifty Shades of Grey

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The world of transplant is anything but black and white and Erin's journey seems to be every shade of grey in between. Her lung function on Friday dropped... Continue Reading »

When no means yes

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Erin's biopsy on Tuesday went smoothly. The doctor said her lungs looked healthy and despite suctioning a fair amount of mucus out with the bronchoscopy there was little... Continue Reading »

Prayer Warriors Needed

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After the mention of possible chronic rejection at Erin's six month evaluation, we've been watching everything very closing. Some days are good, attending a few high school football... Continue Reading »