One month in the books

This first week out of the hospital has been somewhat eventful. On Thursday we had our first bi-weekly outpatient clinic/blood work/X-ray/lung function test visit. Her lung function was up to 46%, over double her lowest numbers prior to transplant. Everyone was very happy with the progress she is making. Her 6 minute walk test at physical therapy 3 weeks post transplant almost mirrored what it was 3 weeks pre-transplant, which is also a good sign. On Friday, we ventured out to the movie theater to see 'A Dog's Prpose', a special reward for......well basically getting her chest ripped open! When we decide to venture out in public we need to be VERY careful, including going at non-peak times, wearing a mask, and good hand washing. We won't be doing a lot of these trips, but every once in awhile it is nice. Saturday we had a visit from the Ronald McDonald House therapy dog, Frankie the black Labradoodle. It is amaIng how therapeutic these dogs are; she was smiling ear to ear, even working on some of the commands with the dog. Sunday marked her one month anniversary and we sat around watching Netflix and playing cards as she was rather fatigued. Today was another clinic day and her lung function test reached 57%! The test was cut short as her X-ray showed a pneumothorax. A what? Basically an air bubble on her chest wall on the left side. The fluid buildup she had when we left a week ago on her right lung has basically cleared up, but the air bubble is a serious concern. They admitted her overnight for observation. They will do another chest X-ray tomorrow and if it has gotten worse they will need to put in a chest tube. As it turns out, we are already scheduled for surgery tomorrow for her one month bronchoscopy, so if it does need to be done they can do both at the same time. The bronch will take some biopsies from her right lung to check for any signs of rejection. Ironically, pneumothoraxes usually show up immediately after a bronch is done, not before; so there is a small chance another one could develop tomorrow. Just another reason why the follow up lasts three months,you just never know when things will take a turn. Aside from being fatigued, Erin didn't display any signs of having the pneumothorax, so that has the doctors a little perplexed. On an up note, she ROCKED physical therapy today, almost keeping pace with the therapist during her walk. We are still struggling to get her diabetes under control and for someone who loves carbs this is proving extra challenging. Extra prayers welcomed this week.


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