So, in my mind this was a short update as we are lacking many answers, but that's not how I ever end up writing. We have spent the past...

My appologies to those relying on these updates, truly. I know that was a large gap. Two reasons. First, and ironically, my whole last post was about waiting...

I am truly sorry for abandoning these posts. I kept waiting for some monumental milestone to announce definitive news to you all that it was finally time to...

The six weeks since returning home have been filled with so many themes and changes that each time I wanted to write, somethng new appeared in our life...

For those who don't know, this past week has been an absolute joyful blur. On Thursday, Alan's team decided his heart was strong enough to leave the hospital...

There is so much to unpack from these past 2 weeks both medically and personally, so buckle up as this will be a long one. Happily, we will...

It seems our worlds are still stuck in a cycle. Kidneys are still injured/delayed and can't eliminate enough fluid; fluid backs up on his heart and lungs and...

I wish there was more to update but we continue to ride this cycle. His heart is still making slight progress but his fluid is poorly managed and...

Last night, I used this phase while talking to my dad to replace the rollercoaster. The up and down swings are way more minimal but we definitely are...

Hello, friends. I'm sorry there was such a gap in updates. It feels way too surreal to believe it's been a full 2 weeks since first surgery. Our...