Åskar is doing great!!!!   His last clinic appointment went great, echo, labs and everything else all looked like it should.  He is fully on his new formula  (Kate Farms) and doing 4 boluses a day and a small amount during the night.  We are working on getting him off night feeds all together. He is still working on eating (by mouth) all the nutrition he needs. Once he does and gets the all clear after he passes his swallow test…we can loss the NG Tube.

Nothing big is happening until December which will be his next Heart Cath and biopsy.