Åskar is still doing great!   Everything regarding his heart is doing good, as usually we are up and down on his Tacro levels being at the right spot (completely normal) so that changes monthly. 

With his feeding issue, we are still working on that. He has been snacking more but still not enough to get rid of the tube. Transplant Team don’t like to do any surgeries until 6mths post (which is this month) so I’m hoping at this month’s clinic we can get the process going and switch him to the Gtube (in his belly instead of his nose). It will be at least a 24hr inpatient stay for that but in the long run it will greatly help us all. 

He is gaining weight and hitting his milestones amazingly. He is all over the place, running around getting into everything. Still slightly delayed with his speech but he is getting there.