Our journey with Ben began before he was even born. During a routine prenatal ultrasound, doctors noticed that his left kidney was enlarged. What started as a routine...

There are a lot of things I wish people understood about this journey. Not because anyone does anything wrong…   but because unless you’ve lived it, it’s hard...

After a moment like that… everything feels quiet. The kind of quiet that comes after so much build-up.After hope rises so high… and then suddenly falls. April 19th...

April 19, 2026 is a day I don’t think I will ever forget. We got the call. The call we had been waiting on. The call that felt...

People often ask what life looks like for Benjamin. And the truth is… it looks a lot like any other 3-year-old’s life. He wakes up full of energy.He...

When people hear Benjamin’s diagnosis, they often look at me and say… “I’ve never heard of that before.” And honestly? Neither had I. Benjamin has something called an...

Waiting for a kidney transplant is a kind of waiting I never knew existed.It’s not just waiting for time to pass.It’s waiting for a phone call that could...

Benjamin is 3 years old. But his story started long before he was born. During my pregnancy, I was followed closely by both my OB and a maternal...