G tube Dependent

We were told by our renal dietitian that it was unlikely I would be able to meet my fluid goal orally, and that it’d be easier to get a G-tube placed instead of continuing with the NG tube. My mom and dad were hesitant at first. They believed I didn’t need a G-tube. But I then developed oral aversion. Being premature and being in the NICU, with ET tubes, OG tubes, Anderson tubes, and every other tube being shoved in my mouth, and a combination of my CKD; I developed oral aversion. Or as one of the speech therapists described it, it’s like PTSD with eating. She explained, imagine you’re sick to your stomach and the last thing in the world you want to do is eat. Then someone shoves a squid or something equally as disgusting in your face and is trying to force you to eat it. That’s how it feels all the time with oral aversion. I eventually wouldn’t take anything by mouth. All of my feeds were placed in my NG tube. That’s when my parents decided it was best to have the surgery and get the G-tube. The G-tube was the best decision, and my parents wished they would have had it placed much sooner!

Leave a Reply

Your email address will not be published. Required fields are marked *