(This is being written from my mom, Ashli's, point of view)I knew transplant wouldn't be the cure all to our problems. I am a bone marrow transplant nurse....
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First Baby Picture!
My parents had to do IVF after a miscarriage, followed by an ectopic pregnancy resulting in a ruptured fallopian tube, causing my mom to need emergency surgery. This...
Continue Reading »Anatomy scan to birth
My parents learned at my twenty week ultrasound - the one they thought finding out the sex of the baby was the biggest news they’d get - that...
Continue Reading »My NICU stay
When I got to the NICU the surgeon was assessing my intestines and was placing them in a silo - a tube that holds them above my body...
Continue Reading »Therapies post NICU
After coming home from the NICU - my therapies continued. Speech therapy (the feeding lady - as my dad called her), occupational therapy(the toy lady), early intervention (the...
Continue Reading »Small Bowel Obstruction
On November 1st, 2018, I started throwing up. My parents didn’t know what was wrong. My emesis slowly became darker and greener throughout the night. My parents drove...
Continue Reading »G tube Dependent
We were told by our renal dietitian that it was unlikely I would be able to meet my fluid goal orally, and that it’d be easier to get...
Continue Reading »Nephrology appointments: Pre-Transplant
Up until my kidney transplant, I’ve had twice monthly or monthly nephrology appointments since I was born. I have gotten my labs drawn every two weeks, sometimes more...
Continue Reading »Delayed for COVID19
First, the living donor program at the University of Utah stopped all living donor work ups. Without a known date of when things were going to resume. A...
Continue Reading »Frequent visits/lab work post transplant
I had to have lab work and clinic visits twice weekly for the first four weeks post transplant. I currently am seen in clinic once weekly, with lab...
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