They tried to extubate her on Sunday.
After Evelyn was extubated, she was unfortunately too weak to maintain her breathing on her own. CPAP and BiPAP were not enough support and her oxygen saturations continued to drop, so the team made the decision to reintubate her to keep her safe.
Because of how weak she was afterward, there was concern for a possible neurological issue or bleed in her brain, but thankfully her CT scan came back normal.
The doctors also discovered another issue. When trying to pass the suction catheter down her breathing tube to clear secretions, it would not pass correctly. They performed a bedside bronchoscopy and found that her breathing tube was positioned in a way that was causing restriction right at the curve of her airway. Thank God it turned out to be positional and not something more serious inside her lungs or airway.
Right now Evelyn is remaining intubated while her body regains strength. Between everything her little body has been through, the weakness, lung congestion, and the tube positioning issue, the team feels she just needs more time before trying extubation again.
Even through all of this, our girl is still fighting so hard. Today they turned down her sedation some, and she was able to use her own hands to change the channels with the remote, hold up four fingers for Despicable Me 4, shake her head yes and no, point to people, and let us know her tummy hurt. Seeing those little pieces of her personality shining through meant everything to us.
This is tough stuff. Watching your child go through all of this is something no parent can ever prepare for. But we are so thankful for every small victory, every answered prayer, and every person helping care for our sweet girl.
Please continue praying for Evelyn’s strength, healing, lungs, heart, and for her body to keep recovering one step at a time.
How You Can Help
Mark those calendars and get ready! The big fundraiser garage sale for COTA for Evelyn’s Heart is almost here! Thank you to everyone who has donated items to the garage sale! If you would like to help with the sale any of the days, please reach out to Rose Thompson on Facebook.
Garage Sale Details:
June 4-6
Location: 7040 Eagle Trail, Centerville, MN
Time: Thurs. and Fri. 8am to 5pm
Sat. 8am to 12pm
Get your “Hearts for Evelyn” T-Shirt
Join our “Hearts for Evelyn” Facebook Group
What makes our partnership with COTA so great is that they will be with Evelyn throughout her lifetime. Every dollar donated to COTA in honor of Evelyn goes to transplant-related expenses. Thank you for being here with us for Evelyn.