This afternoon Evelyn had a very scary episode where her oxygen saturation levels suddenly dropped very low without warning, o2 into the 40's. The team responded immediately, called...

Not a lot of big updates for today. Evelyn still remains sedated with an open chest. The team is very pleased with how her heart function looks as...

Today has been an extremely long day. From 7:30 a.m. to 7 p.m., Ross and I didn’t see our daughter — by far the longest surgery she’s ever...

Today was another good day for Evelyn. She stepped outside for the first time in a week and a half. We were only able to go out for...

Today was a good day. Evelyn had a visit from our friend Alyssa, we played UNO, painted, colored, and danced. Then Evelyn asked me to dye her hair...

We are incredibly overwhelmed in the best way by all the love being shown to Evelyn for her birthday. Thank you to every single person who has sent...

Happy 6th Birthday to my sweet Evelyn! You are such an inspiration to everyone around you. Your strength, bravery, and determination amaze me every single day. At the...

Last night, Evelyn developed Premature Ventricular Contractions (PVCs) — early, irregular heartbeats coming from the lower chambers of her heart that interrupt her normal rhythm. In her case,...

We’ve had a lot of big updates over the last 24 hours, and while none of this feels easy to say, we wanted to share where things stand....