We got results from Evelyn’s latest echo today, and I want to share an honest update. Her heart function has gotten worse. The main pumping chamber is now...

May 3rd will always be Evelyn’s “Cheat Death Day.” I wanted to share this a couple days early, because it’s a part of her story that shaped everything...

All smiles with her new backpack and officially ditched the IV pole! One downside is she still has to carry her heavy telemonitor, so we’re figuring out the best...

Evelyn and I were outside, enjoying the weather, blowing bubbles, just trying to soak up a normal moment. And then Evelyn started to get quiet and tear up....

No big updates over the last week, just life happening in the middle of the waiting. Over the weekend we celebrated little brother turning 3, and in just...

https://youtu.be/7FMAweG1634?si=dFXY7jSYAUMAuKkH We had the opportunity to sit down with our local news station KIMT-3 to share Evelyn’s heart journey, talk about COTA and what Donate Life Month truly...

200 days in the hospital tomorrow. I never imagined this would be our reality. Being here this long isn’t normal for anyone but somehow, we’ve adapted. We’ve found...

Saturday marked 6 months of hospital life for Evelyn. Half a year of machines, meds, alarms, and routines that no child should have to know so well. But...

Evelyn has had a really good week! We’ve been using a little incentive system called “hospital bucks” whenever she finishes an assessment, vitals, meds, dressing changes, etc. She...