Our Story
Shortly before Labor Day 2019, Leslee had an ultrasound that revealed her and Miguel’s unborn daughter, Gabriela, had a severe congenital heart defect. Her condition, diagnosed as Hypoplastic Left Heart Syndrome (HLHS), meant that the left side of Gabriela’s heart (the side which pumps oxygenated blood to the rest of the body) was severely underdeveloped. In later appointments, Miguel and Leslee would learn that HLHS, if left untreated, is fatal. Gabriela’s treatment will require three open-heart surgeries in the first few years of her life, the first of which would happen just two days after birth!
Fast forward to now, God has allowed Ela to survive a very complicated medical journey thus far, including 2 open-heart surgeries and a slew of complications! She is now a funny, happy 4-year-old who loves to sing and play with her older brother. Unfortunately, back in December of 2022, Miguel and Leslee got the hard news that Ela is not a candidate to receive the 3rd open-heart surgery that is needed and vital for her survival because of the fragility and complexity of her heart. Her remaining option for a chance at life is a heart transplant. Ela was placed on the heart transplant list in April 2023 and is still actively waiting for her special gift.
To be sure, the Yustiz family still has a long road ahead! They have reached out to COTA to help with transplanted-related expenses. Your generous donation to COTA to help support families like Ela’s is greatly appreciated.
The Children’s Organ Transplant Association (COTA) helps children and young adults who need a life-saving transplant by providing fundraising assistance and family support. COTA is the nation’s only fundraising organization solely dedicated to raising life-saving dollars in honor of transplant-needy children and young adults. 100% of each contribution made to COTA in honor of our patients helps meet transplant-related expenses. COTA’s services are free to our families, and gifts to COTA are tax deductible to the fullest extent of the law.
Gabriela Yustiz
Martinsburg, WV
Transplant Type: Heart
Transplant Status: Transplanted
Goal: $50,000.00
Raised: $74,550 of $50,000 goal
Raised by 147 contributors
Updates
Infusion #1: Update 2
Posted
4/2/26 The plan has once again changed. Ela went for a very thorough eye evaluation today to see if her eyes are ok and if the ophthalmology team... Continue Reading »
Infusion #1 Update 4/1/26
Posted
Quick update…. We are actually still at the hospital attempting to get this whole infusion done. She’s been admitted. Her body is only tolerating running this infusion at... Continue Reading »
First Dara Infusion Day 4/1/26
Posted
Please pray with me as Ela undergoes this first experimental infusion heart transplant rejection treatment—Daratumumab—for her ongoing antibody mediated rejection. She’s had this 2nd round of rejection since... Continue Reading »
Ela Update 3/27/26
Posted
After another set of labs (her poor arms are so bruised), chest x-ray, and impromptu visit with her heart transplant team it was determined that Ela is in... Continue Reading »
Ela Treatment Update 3/24/26
Posted
Quick update…. It looks like Ela has some type of infection going on. All viral stuff came back negative. Team thinks based on her labs it is most... Continue Reading »
ER Trip & Treatment Update 3/22/26
Posted
Ela is scheduled to start the experimental Daratumumab treatment this Wednesday. These treatments will be weekly for the next 2 months. Our planned scenario is to come up... Continue Reading »
Encouraging News Before a Hard Season
Posted
It is so hard to believe that there is this unseen battle going on inside of Ela's body. Leslee, my parents, and I spent the whole day with... Continue Reading »
Ela Update: Heart Transplant Rejection 3/10/26
Posted
This past week, Ela’s transplant team discussed her case. The most recent Allosure test (which is a pretty reliable indicator of rejection) came back higher than it should... Continue Reading »
Ela Heart Rejection Update 3/1/26
Posted
Ela had a Rituxinab infusion in January and an IVIG infusion this past Friday. These infusions are to help treat her antibody-mediated rejection that was better, but still... Continue Reading »
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Our Story
Shortly before Labor Day 2019, Leslee had an ultrasound that revealed her and Miguel’s unborn daughter, Gabriela, had a severe congenital heart defect. Her condition, diagnosed as Hypoplastic Left Heart Syndrome (HLHS), meant that the left side of Gabriela's heart (the side which pumps oxygenated blood to the rest of the body) was severely underdeveloped. In later appointments, Miguel and Leslee would learn that HLHS, if left untreated, is fatal....
Continue Reading »Gabriela Yustiz
Martinsburg, WV
Transplant Type: Heart
Transplant Status: Transplanted
Goal: $50,000.00
Raised: $74,550 of $50,000 goal
Raised by 147 contributors
Updates
Infusion #1: Update 2
Posted
4/2/26 The plan has once again changed. Ela went for a very thorough eye evaluation today to see if her eyes are ok and if the ophthalmology team... Continue Reading »
Infusion #1 Update 4/1/26
Posted
Quick update…. We are actually still at the hospital attempting to get this whole infusion done. She’s been admitted. Her body is only tolerating running this infusion at... Continue Reading »
First Dara Infusion Day 4/1/26
Posted
Please pray with me as Ela undergoes this first experimental infusion heart transplant rejection treatment—Daratumumab—for her ongoing antibody mediated rejection. She’s had this 2nd round of rejection since... Continue Reading »
Ela Update 3/27/26
Posted
After another set of labs (her poor arms are so bruised), chest x-ray, and impromptu visit with her heart transplant team it was determined that Ela is in... Continue Reading »
Ela Treatment Update 3/24/26
Posted
Quick update…. It looks like Ela has some type of infection going on. All viral stuff came back negative. Team thinks based on her labs it is most... Continue Reading »
ER Trip & Treatment Update 3/22/26
Posted
Ela is scheduled to start the experimental Daratumumab treatment this Wednesday. These treatments will be weekly for the next 2 months. Our planned scenario is to come up... Continue Reading »
Encouraging News Before a Hard Season
Posted
It is so hard to believe that there is this unseen battle going on inside of Ela's body. Leslee, my parents, and I spent the whole day with... Continue Reading »
Ela Update: Heart Transplant Rejection 3/10/26
Posted
This past week, Ela’s transplant team discussed her case. The most recent Allosure test (which is a pretty reliable indicator of rejection) came back higher than it should... Continue Reading »
Ela Heart Rejection Update 3/1/26
Posted
Ela had a Rituxinab infusion in January and an IVIG infusion this past Friday. These infusions are to help treat her antibody-mediated rejection that was better, but still... Continue Reading »