Today is hospital discharge day! Woohoo! Thank the Lord! Several tests still aren’t back yet…and yes, she still has rejection based on her echo and biopsies; but, her...

Partial Cath Results  Praise the Lord Ela’s cath went smoothly and without complication yesterday as well as her port placement procedure. The cath showed that her heart pressures...

Leslee was recently trying to count how many heart caths Ela has had since she's been born. We're not quite up to 20 but we're getting close. It...

Our apologies for our delay in writing you. We got much to share today! We are on week 3 of this particular hospital stay. You may or may...

Ela handled her pheresis and bortezamib treatment well on Monday. Thank the Lord! No one knows exactly what caused her episode last Thursday during treatment. They just keep...

Overall, Ela is in good spirits. Her blurry vision is gone (Praise the Lord!) and she continues plasmapheresis, bortezamib, and rituxinab treatments in attempt to get rid of...

Well…would you believe that plans have changed yet again? What was supposed to be a 3-4 day trip has now turned into a different treatment plan altogether with...

4/2/26 The plan has once again changed. Ela went for a very thorough eye evaluation today to see if her eyes are ok and if the ophthalmology team...

Quick update…. We are actually still at the hospital attempting to get this whole infusion done. She’s been admitted. Her body is only tolerating running this infusion at...

Please pray with me as Ela undergoes this first experimental infusion heart transplant rejection treatment—Daratumumab—for her ongoing antibody mediated rejection. She’s had this 2nd round of rejection since...