Hi all! It has been a few weeks since we have updated. Ela has been continuing her weekly experimental Dara infusions and is doing well overall! Today is...

https://youtu.be/ijnnfUEkVm4?is=zHWmy0mLSAozKbaD

Hello everyone, you'll hear in the video below that Ela is in Philly receiving her 3rd infusion right now. We are grateful that the Lord has preserved Ela...

https://youtu.be/NRbhsNlCHXU?is=9fQePevVU8Whd5IG

https://youtu.be/yTNe9M-ieME?is=UE48uS6UPP_sc6U5

For those that may have missed the last update, Ela’s Allosure test (the one that can indicate active rejection and if the heart is potentially being affected because...

It has been over a month since we wrote our last update. What can I say? Busy summer for the Yustiz family. Between finishing the school year, family...

Last night I laid down with Noah to put him to sleep and decided to turn to him and ask him, "do you want to make a little...

Thankfully, not much to report from this appointment. Ela’s echo still shows thickened (hypertrophy) septum (heart muscle), but it’s not worse. Her cardiac labs look pretty good so...

Hi prayer warriors! Just a quick note to let you know that Ela has a follow up appointment Friday 5/15. She will have labs, echo, EKG and we...