Last night I laid down with Noah to put him to sleep and decided to turn to him and ask him, "do you want to make a little...

Thankfully, not much to report from this appointment. Ela’s echo still shows thickened (hypertrophy) septum (heart muscle), but it’s not worse. Her cardiac labs look pretty good so...

Hi prayer warriors! Just a quick note to let you know that Ela has a follow up appointment Friday 5/15. She will have labs, echo, EKG and we...

Today is hospital discharge day! Woohoo! Thank the Lord! Several tests still aren’t back yet…and yes, she still has rejection based on her echo and biopsies; but, her...

Partial Cath Results  Praise the Lord Ela’s cath went smoothly and without complication yesterday as well as her port placement procedure. The cath showed that her heart pressures...

Leslee was recently trying to count how many heart caths Ela has had since she's been born. We're not quite up to 20 but we're getting close. It...

Our apologies for our delay in writing you. We got much to share today! We are on week 3 of this particular hospital stay. You may or may...

Ela handled her pheresis and bortezamib treatment well on Monday. Thank the Lord! No one knows exactly what caused her episode last Thursday during treatment. They just keep...

Overall, Ela is in good spirits. Her blurry vision is gone (Praise the Lord!) and she continues plasmapheresis, bortezamib, and rituxinab treatments in attempt to get rid of...

Well…would you believe that plans have changed yet again? What was supposed to be a 3-4 day trip has now turned into a different treatment plan altogether with...