Ela is scheduled to start the experimental Daratumumab treatment this Wednesday. These treatments will be weekly for the next 2 months. Our planned scenario is to come up on Tuesdays, infusion on Wednesday, observation on Thursday and home on Friday. Then, we will be home Saturday-Monday and repeat this weekly for the next 8 weeks. Then, the infusions will space out to bi-weekly for 3 more months.
We are headed to CHOP ER now though because Ela has been sick this last week on and off with symptoms that could mean infection, worsening rejection or something else. The team wants us to bring her in today to rule out things, to make sure her heart is ok and that her rejection isn’t worsening.
On another note, our 2 year old decided to add to the excitement this past week and stick his hand under a running treadmill. He has 2nd and 3rd degree burns. Pray his hand heals well and no infection.
Thanks for your prayers for all of our family. May God be glorified even in days of suffering.
Praying right now and every day for your family. Thank you for the updates. We love you all. God has all of this in His awesome hands.
Keeping you in our prayers Leslee. And Maranatha Baptist Church is praying for your family. Sue &Lonnie
Praying for all these requests and needs for the days ahead. Much love!
Praying 🙏🙏🙏🙏
Praying for sweet Ela and your family!
Psalm 121:1-2
I lift up my eyes to the hills. From where does my help come? My help comes from the Lord, who made heaven and earth.
Praying about each of these things! Asking God for mercy and grace, as well as healing!!!🙏😘🙌
Praying for your entire family!
Praying for your family God’s will be done. ♥️🙏🏻
Praying for you all!
Praying now. God draw each of you close and wrap you in His loving care. Lord help Ela through these long days and weeks of this new treatment. Give results that will cause her heart to become strong and healthy. Praying as well for your 2 year old’s hand quickly heal.
Sending prayers to all the family and a special one for sweet Ela may God bless her with a healthy heart soon!!!!🙏🙏🙏
Praying for your little ones and for you both to remember how much The Lord loves you soooooooo much and is with you every step of the way. He will never leave you, nor forsake you!! ~Hebrews 13:5 paraphrased
Praying for your family and your sweet little girl