Quick update….
We are actually still at the hospital attempting to get this whole infusion done. She’s been admitted. Her body is only tolerating running this infusion at a very slow rate. Thankfully, the reactions aren’t as bad as they could be. When we try to speed it up slightly, she complains of stomach pain. So we go back down (and by that I mean back to 12.5 ml/hour). As of now, the infusion has been stopped because she was complaining of blurry vision. We can’t proceed until ophthalmology comes to check her eyes. Pray her eyes are ok. At this point, I am not sure if she will be able to get the whole dose or what next steps will be. Appreciate your continued prayers.
Thank you for every update.
Keeping you all in our thoughts and prayers.
Prayers for Ella and family. What a long hard road you are traveling! What would we do without Jesus to hold us? Rest assured that as your updates are sent out, it’s a nudge for us to cry out on her (and your) behalf for God to do what’s best in sweet little Ella’s life. Jeremiah 29:11
Praying for her, and for all of you.
Poor baby and parents. I mightve missed it but never heard if they figured out her prior infection?
So sorry. As always love & prayers
God’s got this! Always in my prayers 🙏
We are praying tonight. 🫶🏽
We are praying with you!
Thank you for tonight’s update. Praying for better news tomorrow ♥️.!Hope everybody can get some sleep.
Praying still for Ela and all of you in the family. This is very taxing and my heart reaches out to support you all. Praying every day . I trust that God is in control and will get all of you through this latest on challenge . 🙏❤️✝️
Poor baby and poor Mom and Dad. 🙁 We are praying for you guys! <3
We continue to pray fervently!
My heart echoes the words of Ellen Harrison above. May the Lord hear our prayers for all of you. ❤️🤗😘
Praying🙏🏽