Quick update…. Good and not so good news. Good news…no pneumotosis anymore on x-ray! And she walked a lap for the first time in 2 weeks! She is acting more herself which is so nice to see.
Not so good news…She is still in the Cardiac Intensive Care Unit. Her belly is still distended, she’s having continual GI issues which is causing her pain, and her echo today was NOT reassuring. She has two valves that are leaking more than they were on the previous echos. This could 1) potentially mean she is in rejection again (but that can’t be confirmed yet until we do some further tests and ultimately biopsies). It is possible her cath will need to be sooner than tentatively planned because of these things. 2) OR it could mean her heart’s just working too hard right now for other reasons such as fluid overload. We are working these next few days to increase her diuretics and manage her fluid balance. (But increasing her diuretics will negatively impact her kidneys). Everything is such a delicate balance. Then another echo on Wednesday to see if things have improved or not. Antibody tests will be sent tomorrow and all these things together will help us determine if this is most likely another bout of rejection or something else. Thanks for your continual prayers. Please pray no rejection and everything will start to just work together the way it should.
Praying Ela is not in rejection again!
Psalm 27:13-14
“I believe that I shall look upon the goodness of the Lord
in the land of the living!
Wait for the Lord;
be strong, and let your heart take courage;
wait for the Lord!”
Prayers for your family.
Continued prayers! Thanks so much for the continued updates, they can’t be easy. When you guys make it through this trial, you’ll be medical experts. I have to pray as soon as I read these to be a specific as I possibly can. God is definitely for you guys and so are we. If there’s anything we can do don’t hesitate to reach out. Reading all the comments after your posts, you can see so many people feel the same way.
Your updates help us pray specifically. Thanks so much! Our fervent prayers continue!
Praying specifically right now for Ela’s needs and for your continued strength….May you feel God’s love and grace in a very tangible way today 💜
Joining in prayer!
Praying right now, Lord, You are the master physician! Praying to You, Lord, NO HEART REJECTION! Amen
Praying
praying everything starts going in a good direction
We’re praying often for Ella and family.
Praying
Oh my. Ok thx again for updates/means so much that yall take time to keep us informed on how to pray. Praying no rejection. Glad for some good news at least. Love&prayers
We continue in prayer here too. Thanking God for His love, strength and comfort for the whole family as you navigate these hard times together.