10/18/26
Ela’s latest Allosure (transplant rejection lab test) came back and is in NORMAL range at 0.08! This is a huge deal! Thank you, Jesus! This number means that most likely little-to-no active rejection is happening right now! Now, there is the possibility that this number is low yet there is still rejection. But since her other labs looks great (for Ela, compared to previous) in conjunction with this Allosure result, the team is hopeful that the Dara infusions are doing their job. So with all that being said, we get a few weeks “off” from having to go to Philly and get to just enjoy life at home!
The next big thing will be her heart catheterization. This will take place in a couple of weeks on November 3. Ela and I will be in Philly for that whole week as we prep for cath and she has maintenance IVIg infusion treatment in attempt to keep rejection at bay. Some information about her heart we will know right after the cath procedure is done. Some information, like biopsies, will take a few days to come back. Ela’s future treatment plan rides on the results of this cath. The slightest change can alter the treatment plan at any moment. But for now we are enjoying being home while she is looking and feeling so well.
We continue to praise the Lord for getting us through so many trips to Philly this far! It’s been tough—maybe more on mom than Ela. She’s handled it like a champ! We don’t know what the future holds, but we know the One who holds the future. And we are confident that whatever lies ahead beyond November 3, that He will be there proving His faithfulness time and time again like He always does.
Thanks for your continued love and prayers along the journey!
“Because of the LORD’s faithful love we do not perish, for his mercies never end. They are new every morning; great is your faithfulness! I say, “The LORD is my portion, therefore I will put my hope in him.””
Lamentations 3:22-24
Praise the Lord for answered prayers! We will be in prayer leading up to the cath. Thanks for keeping us updated.
Praise the Lord!
Wonderful update!!! Love the pictures.
Praises indeed!
Praise the Lord! Thanks for the great update!
God is so good!
🙏🙏🙏
Praise the Lord
This is so great to hear. Thx for updates! Enjoy family time theyre all so precious ! Nov 3 is my bday so ill remember that one!!
Thank God for this good news! The Children are beautiful, and Ela looks so cute in those glasses. Lots of prayers going up, and love to you all, and here’s to a special and precious time together, at home, for the family.
We continue praying for all of you. Thank you for the “good news!” We love you!
Uncle Steve and Aunt Michele
Such good news🙌🙌thx for sharing! Enjoy being all together for awhile! Nov 3 is my bday so ill remember her cath!
We are rejoicing, giving God glory! We continue to pray for your entire family!
Rejoicing with you that Ela and you all have had a sweet respite. God knows the plans He has for Ela and we pray it will be continued health and strength. We join you in praying for more great news following this testing. ❤️🙏
What great news and encouragement to all! Thankful for the Lord’s healing touch! May Ella continue to heal well!
Great news!!!! Continued prayers!!!
I’m very happy for the entire family. God is good.
Love those smiles! I’ve got a big one too!
Wonderful, Praise The Lord!