Madison Lyman is proof that just because you’re a new friend doesn’t mean you’re not an incredible friend. Madison is our Outreach Coordinator and will help to communicate...

Not only is Ashley Montague Lily’s sweet auntie, but she is also our Website Coordinator with COTA. She will be creating blog posts, adding photos, and helping to...

Lily had an appointment with her pediatrician today. It was just a check up. Our doctor likes to keep track of Lily since she is so complex. I...

What do clinic visits look like for us? The short answer: Tons of walking around. The long answer: We get checked into Family House after a long drive...

Lily was born on November 11. She spent four and a half months in the ICN. That means that she spent her first Thanksgiving, Christmas, New Years, and...

When I found out about my daughter’s condition, one of my immediate thoughts was, how will I tell Theo? My oldest. How could I tell him that his...

All things considered, Frank and I have built a beautiful life together. We stood by each other while we each started our careers. Frank got his CPA license,...

I am a planner. I have my whole life planned. And honestly, it’s gone pretty dang close to plan. I graduated from college in four years, got the...

When you are pregnant with a baby who is supposed to die, you do a lot of dreaming. First, there comes the wishful thinking. They must have been...

As a woman, there are so many assumptions about motherhood, including your road to motherhood. You think about the marriage you will have. Your partner in parenting. Then...