First, an update from 1/13 I shared on Lucas’ facebook page (COTA for Lucas Fadenrecht):
Update: Lucas’ medical team is very happy with his progress! He ripped out his feeding tube last night and he’s now off oxygen as well. He ate a normal breakfast and got the go ahead to eat a normal diet from here on out. They said that if things continue as they have, Lukey can move from the ICU to the floor on Friday (his 2nd birthday)! His transplant surgeon stopped by a few minutes ago and he described the echo from yesterday as “fantastic”! He was very pleased with how Lukey was doing! Lukey is so strong and resilient and we’re so proud of him!!!
Today, Friday 1/15 is Lucas 2nd birthday, and what a day it is! What a gift he’s been given! Our gratitude is endless today. Lucas is recovering wonderfully. His trajectory has put him in a position to move from the ICU back to our familiar surgical floor (shout out RC6 team!) We’re set to move this evening.
It’s been fascinating to see Lucas’ surgical recovery develop so quickly, especially after our early scare. Kids are incredibly resilient. Today is the most he’s seemed like himself. His cute silly personality, rolling around in his crib. Corey’s made it extra special for him with all kinds of farm animal themed decorations. I met Corey to swap this morning and she was wearing a cow print shirt and a cow headband. Lucas loved it! I had a sheep one on, and he was yelling “sheep! sheep!”.
They’ve continued to peel back support medications & equiptment. At this point most of his meds are oral, and for the first time since he was 9mo old he doesn’t have any tubing continuously attached to him. The medication he’s been on for over a year, Milrinone, was stopped yesterday.
The team is continuously monitoring Lucas’ lab work ups to adjust the immunosupression and ensure organ rejection is at bay. So far, all has been going well.
Once Lucas is on the floor, Corey and I will begin rigorous education over the next week in order to prepare for discharge. If all goes really well, we may even be discharged to our apartment next weekend.
Thank you all for your continued prayers, love and support for this sweet boy. Please join us in wishing him a HAPPY 2nd BIRTHDAY!!!
Happy 2nd Birthday!!!!!
Lord, Thank you!! Please continue to heal this sweet family in All the ways that only You can ???? may God continue to bless and keep you all. Happy Birthday Lucas????
Sorry my post was meant to have!!!!!?
Praises for this special two-year-old and his birthday! May God continue to work beyond our expectations in bringing your dear boy to greater health!
Blessings to each of you. Thank you for posting. The news is over the top incredible!
Awesome news! Praise God!
What a great birthday present to be "tubeless" and going make to a normal room! It sounds like a fantastic, blessed day! So happy for you all! God is good all the time! Can’t wait to hear you are all back in your apartment!
Happy Birthday Lucas !!
We’re so happy your getting better, we love you so much.
Wow..What a journey this has been for all of you, and to see Lukey be able to celebrate his 2nd birthday with this miraculous gift is truly beyond joyous ????
Happy Birthday!!
What a wonderful update. We have been thinking about you all and sending strength and healing prayers and will continue to do so.
Great update!!!!Happy birthday Lucas!
How absolutely wonderful!! What a huge sigh of relief you will feel when you can be all together again in your apartment and eventually home!! So miraculous!
What wonderful news ! Prayers do work! Sending love to all of you, especially brave little Lukey.
Happy Birthday to you, Lukey! You are fearfully and wonderfully created and my heart knows it! My prayer for you, little one, is that you will grow up and share the Love of Jesus to all you meet for you were created for a special purpose. We hope to see you again soon. Give your mommy and daddy and Addie a big hug for us. We love you all dearly.