Today I decided to start a medical blog page for Sabrina.

Kyle suggested it a month ago, but I refused because I hoped there had been a mistake—that Sabrina was not as sick as they were telling us. I didn’t want to be dramatic. I wanted to wake up and have this all behind us, with both of my children home, happy and healthy. Creating a CaringBridge page felt like jinxing something, like if I put our pain out into the world it could somehow make it last longer. I convinced myself that if I kept my head down and focused every ounce of my energy on getting Sabrina home, I could make it happen through pure force of will.

But here we are. Fifty days into Sabrina’s hospitalization. I’ve been thinking about all the people who have reached out, all the people who care. There are prayers going up literally all around the world for her—from people we’ve met on our travels and friends near and far. There are so many who love Sabrina, and I’ve reached the point in this journey where I think I can share some of the pain, and some of the joy, too.

For those who may not know the details, here are a few bare truths:

1. Sabrina was admitted to Children’s Hospital on 7/25/25. After a barrage of tests, it was determined that she had an enlarged left ventricle—the main pumping chamber of her heart. 
2. With additional testing, she was diagnosed with Dilated Cardiomyopathy (DCM).
3. At first, there was some small improvement in her heart function. However, outcomes for DCM in infants are generally not good, so the Heart Failure team placed her on the transplant list as soon as possible. She has been listed since 8/13/25 and is currently status 1A—the highest priority possible.
4. This is extremely hard to write. We are starting to accept that Sabrina will likely need a new heart. We are still hoping for a miracle—that her heart could slowly improve with medication enough to be managed long-term—but we know that would be an exceptional outcome.

That is all the truth I can handle today. My goal with this first post is to put the facts out there, so those who care about Sabrina know what’s going on and don’t have to hear it third-hand. In the future, I’ll share more about this experience as I’m able to process it, and I’ll continue to post updates on Sabrina’s journey.

Please keep praying, hoping, sending healing vibes, and putting good energy into the universe for our little girl. We feel every bit of it.

#SabrinaStrong