100 days as Status 1A.

This isn’t a milestone we ever imagined marking.

This diagnosis changed everything, abruptly and permanently. It took away our sense of certainty and safety, and we are still grieving that. That grief exists alongside our gratitude, and both are real.

What we are not grieving is Sabrina.

She is here. She is alive. She is growing. And she is doing so because of the incredible medical care and constant support from the team at Children’s Hospital, who have carried her — and us — through these 100+ days.

We have now been waiting on the transplant list at 1A for 100 days for a gift that is impossible to fully process. Some days we can look at that reality head-on, but most days we can’t. Right now, we take this one day at a time.

And in the middle of all this waiting, Sabrina keeps living.

She giggles. She chatters. She eats purées. She rolls over. She’s got her first teeth. Ordinary baby things that feel extraordinary when nothing about your life feels ordinary anymore.

Today we acknowledge the waiting, the grief, the hope — and we celebrate Sabrina, who continues to show us what it means to fight simply by being herself.