Quick update!

We’re working toward getting Sabrina off continuous feeds in preparation for going home. She’s been on continuous feeds since mid-November, when bottles just weren’t something she could tolerate. Our first attempts were discouraging — she wanted nothing to do with them.

Then something clicked. With Ms. Rachel on the TV helping her focus, she latched onto her bottle like a fish on a hook and has been eating like a champ. It really feels like she’s ready for this next step.

Over the next week or two, the plan is to keep building up how much Sabrina takes by mouth while Kyle and I learn her nursing cares.

We also learned today that some members of Sabrina’s heart failure team share a different outlook on 1B status and feel that, with extra time, she may still have a chance at getting the heart she needs without needing to decline in health and be put back on 1A status again. It will take patience and trust — even when that’s really hard for us.