Blog

Excitement abounds!

Hi all! It has been quite awhile since we have updated on our COTA page.  We would love to say thank you for all the patience and encouragement.  ...

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Two, Sweet!

“There is always, always something for which we can be grateful.....” ? As our city currently struggles with the pandemic there is a little something that makes me...

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SEPTEMBER 2019 BLOGS

Pre-transplant photo below courtesy of Maribel Amanda  - on FB:  MaribelAmandaPhotography    UPDATED 9/7/2019     God is good!  I certainly did not think we would be updating so...

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GOOD NEWS FOR ALICE!

Some additional antigen testing was performed at the Lucile Packard Children's Hospital in Stanford and the family has been advised that Alice can accept a liver from a...

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ALICE IS GOING TO STANFORD!

Due to the complexity of Alice’s condition and anatomy, Phoenix Children’s Hospital has declined to proceed with transplant.  The plan is now to have her evaluated by Lucile...

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BECOMING A LIVING DONOR

WITH THE FEDERAL INJUNCTION AGAINST THE UPDATED UNOS RULES, PEDIATRIC CADAVER LIVERS WILL CONTINUE TO BE MADE AVAILABLE TO ADULTS FIRST! THIS  FURTHER REDUCES THE NUMBER OF LIVERS...

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Updates

It has been a crazy few months since we have updated last on Alice Marie.   Our friends and family have joined together to help raise funds and awareness...

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THE UPS AND THE DOWNS

First the good news, had our check up at Phoenix Children's Hospital and Alice continues to gain weight and her labs are looking good! Also, they removed the...

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