Labs came back today less than optimal; her liver numbers were dramatically elevated.  For some time, they have been keeping her on a lower level of Tacrolimus (anti-rejection medication) due to her ongoing fight with the EBV virus, so these numbers do not come as a surprise. We have been blessed that her liver has adapted to the low levels of Tacro for as long as it has. The Seattle team has ordered an ultra sound to check Hepatic vein flow which we will do here in Portland tomorrow or Friday, then either a liver biopsy or a venogram will be performed in Seattle Monday or Tuesday.  If it is not an issue with Hepatic vein flow, elevated numbers of this nature typically indicate rejection; but not always.  A biopsy will give definitive answers. A trip to Seattle for a biopsy or venogram will mean an overnight stay prior to our hospital check in.  During that time we will need to complete Covid testing, as this is now required prior to all surgical procedures.  Then, on the day of procedure, she will go under general anesthesia and stay at least one night at Seattle Children’s.  If rejection is not detected, they would simply adjust her medication and we would return home.  If rejection is detected, we could be admitted for as long as a week.

We have not yet received updated EBV numbers along with these new liver numbers. Please pray that they are not elevated as well.  That is my only real fear at this point.  It is impossible to fight rejection and EBV simultaneously. More to come………………………………