This week has honestly been one of the best weeks I’ve had in a long while. This journey of mine is long and is physically as well as mentally exhausting. Not only does Cystic Fibrosis take my ability to enjoy life due to my breathless moments, but it steals my happiness.

Depression and anxiety are additional burdens I live with. I find it hard to get out of bed somedays as well as unable to fall asleep. I worry everyday about my life, my family’s lives and how I affect them. I wonder now, when will the call for a life saving double lung transplant come? Will the call come before it’s too late, will the surgery and life changes to come with it worth it!? Everyday this week, I felt NORMAL; no sadness, no mornings of not wanting to get up, easy nights and true bliss. I don’t know how I was blessed with such a beautiful week of happiness and calm; but I thank GOD for this fantastic week. These types of days or weeks that do not come often are so vital in my fight to live. These memories are what I fight for, the chance to have many more.

Brendon with his papa at the beach

#Cysticfibrosis
#doublelungtransplant
Cotaforteamjennieg#