2.5 months

Let me just say it’s crazy that she is almost 3 months out!! When she was first transplanted she was put on meds that would fall off after 90 days. And at that point, that seemed like it was a life time away. But here we are a week from that mark and it seems like it was just yesterday she was transplanted. Not only are so we so close to that milestone but we have been home a whole month!! Although it’s taken some getting use to our new new, it’s so nice to be home especially in our beds. Up until this week we’ve had weekly Dr’s visits with her Gi here in akron and once a month visits to Cincinnati. Last week was our last weekly visit as we are trying out every other week visits now but still going to cinci once a month. So it’s so nice to only have to go to the hospital for labs one week.. Med wise Khloe is chugging right along her path of steroid tapper and is now down to 5mg once a day! She also got to go down to once a day on her blood pressure med and thankfully her BP is doing amazing. It’s always a juggle with all the meds she’s on. Khloe started in home school instruction a few days after we got home and has been rocking it like the rockstar she is. She has been working so hard to get caught up and is only a few weeks behind her class now! Although she can’t wait to get back to school she enjoys having her teacher come and work with her. It’s amazing the difference in her work now. Guess you never know how bad something is until it’s fixed. A horrible side effect from the disease when your liver starts to fail is it can cause brain issues(fog, memory, learning, speech etc). We have noticed that some things pre transplant she either doesn’t remember or doesn’t remember all of it. But that’s okay because now once she learns she’ll be good to go.  Well  I think that’s all for now. Thank you for all the prayers and support it truly does mean a lot. 

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