Where to start…

Last week Westen had his MRI/MRA and echocardiogram. He was cleared from both cardiology and neurology specialists for transplant. On this day he also had labs done and met with his liver doctor (Dr. Gumm) and dietitian (Becky).

What’s to come…

Tomorrow morning, 9/17/26, the liver board will meet and hopefully approved him to be on the transplant list pending insurance approval (a formality). By Tuesday, 9/22/26, Westen should be active and ready for offers on the list. Tomorrow Westen will also start Total Parental Nutrition (TPN or IV nutrition) due to his body facing end stage liver failure. His liver is no longer absorbing the nutrients that is currently being given through NG tube and he isn’t gaining any weight. He will continue to keep the NG tube for medications.

Westen will be admitted to Children’s Hospital tomorrow 9/17/26 to have his PICC line (IV line) placed and TPN started. The plan is to be admitted for a minimum of 7 days with the understanding that he may stay until he is transplanted.

Again, all live liver donors should be ready to start the screening process on October 1st. We will keep you posted.

Thank you for your continued prayers, shares, calls, texts and donations to COTA for Westen. It truly does make a difference and your generosity does not go unnoticed.