Finally, the moment we have been waiting for... Westen is officially on the national liver transplant list for a decease donor. October 1st is when we are anticipating...

Want the good news or bad news first? Let's start with the GOOD news and goals: Westen is expected to be discharged from the hospital on Friday! He...

Where to start... Last week Westen had his MRI/MRA and echocardiogram. He was cleared from both cardiology and neurology specialists for transplant. On this day he also had...

Westen had his EEG yesterday morning - the test measuring electrical activity of the brain to ensure that he was not having or at risk for seizures. Results...

Westen has had an adventurous past week. Saturday, August 30th we needed to take Westen to the ER at Children's because his feeding tube was pulled out and...

Update from Westen's parents: The last month has been rough for Westen. He had a scare at daycare where he made a gasping noise, went limp, and possibly...