Our Story

Towards the end of October 2022, we first noticed that William had some petechiae (small red dots) in his eyes.  As we looked closer, we noticed more on his body and that he also had a fair amount of bruising on his arms and legs.  Our oldest son Alex had experienced something similar when he was a year old, so we had our suspicions that something was wrong.  We quickly...

Continue Reading »

Updates

Has Anyone Seen the Other Shoe? Oh Wait…

Posted

Alright well my title is funny to me but likely needs explaining like many things in my life.  The saying “waiting for the other shoe to drop" feels... Continue Reading »

He’s Just Alex

Posted

Alright…well first off let’s give everyone an update on our favorite BMT patient Will!  While the steps over the last couple of weeks have been small, they have... Continue Reading »

Spring Break?

Posted

Yes I know its been over a month since I last updated the blog.  I originally intended to update this once a week to document our journey, but... Continue Reading »

A Day In the Life

Posted

Updates these days are few and far between as Will still remains in a critical place and all the meds, treatments, appointments, infusions, dressing changes, bloody noses, swelling,... Continue Reading »

Why?

Posted

Why, why, why???? This was from a drive into the hospital a couple of weeks ago before all of the recent excitement. It's one of the few pictures... Continue Reading »

Wins and Losses, Passing Day 100 and a little thing called Transplant Associated Thrombotic Microangiopathy!

Posted

The updates are coming a little farther apart these days as we work through a very slow, gradually changing routine on Will’s health.  However, this week brought in... Continue Reading »

Resolutions and Trying Not To Feel Left Behind

Posted

First and foremost, Happy New Year to all of you reading this.  I hope you have all had a safe and happy holiday season, a Merry Christmas, Happy... Continue Reading »

Going Home Again

Posted

Whew! A lot has been going on since I last updated the blog back in November.  Back on the 25th of November it was the Saturday after Thanksgiving... Continue Reading »

Um What Do We Have To Be Thankful For? (Day +53 through, umm, whatever day 11/25 makes it!)

Posted

So last week before we had any inkling that we would wind up back in the hospital I had been thinking through putting together a post talking about... Continue Reading »