COTA’s Transplant Families Program
COTA’s Transplant Families Program walks alongside families before, during and long after a child’s transplant – through every step of a transplant journey. This program focuses on education, advocacy, research and outreach specific to those families travelling a transplant journey.
COTA’s Transplant Families Program Pillars
Education
Webinars, podcasts and newsletters that help families and providers navigate a transplant journey.
Advocacy
Partnerships with transplant-related organizations across the country to precipitate family-focused change for the transplant community.
Research
Research project collaboration on studies in an effort to ensure the transplant family, and patient, voice is being represented.
Outreach
Useful tools and programs to help transplant families navigate a transplant journey.
COTA’s Transplant Families Program Includes:
Totes for Hope Welcome Bags
Totes for Hope Welcome Bags are provided free of charge to transplant centers nationwide for distribution to families. These bags contain useful information and items for families who are new to transplant and staying in the hospital. To date, more than 2,000 Totes for Hope Welcome Bags have been provided.
Caregiver Connect
Caregiver Connect is a monthly peer support online session designed for parents and caregivers travelling a transplant journey. Caregiver Connect is held the second Tuesday of each month and moderated by a licensed social worker.
Webinars and Podcasts
Webinars and podcasts cover a variety of topics including transplant medical issues, individual transplant families’ stories and transition from pediatric to adult care.
Pediatric Transplant Annual Conference
Annual online event focused on transplant families’ issues, including those specific to families managing rare disease diagnoses.
