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Our Story

Hayden Murnahan is a ten year old boy waiting on a second kidney transplant.  When Hayden was nine months old, he was diagnosed with stage IV Chronic Kidney Disease (CKD).  Hayden was three when he received a living donor transplant on May 7th, 2012.   The past few years Hayden has struggled with several bouts of rejection, severe hypertension and numerous viruses that his body just can’t get rid of. 

Dr’s have determined that Hayden needs to undergo a nephrectomy (kidney removal), have a hemo and peritoneal catheter placed in June. Hayden will have to stay at Children’s Mercy for at least a month after the nephrectomy to receive hemo dialysis. Once his peritoneal catheter is healed, he will be able to return home and do dialysis at home every night. 

Hayden will be listed as inactive on the transplant list in February. Once the viruses are out of his system, he can be listed as active on the transplant list. Our hope is that Hayden is not on dialysis longer than a year.

 

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Featured Post

Update 8/3/19

Special thank you to everybody that went out and supported Hayden at the Freddy’s fundraiser.  There was a great turnout and fun face painting and bouncy houses.  Hayden had a good birthday.  Thank you to all of you that sent him special messages.  
 
Life has been busy this past week...

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Updates

 

Update 8/15/19

Hayden will go in for surgery tomorrow at 8:00 A.M. to stich the catheter in place. Hayden will stay the night tomorrow night and they will do hemodialysis tomorrow and flush the PD catheter and make sure it works. We will be released Saturday.   Continue Reading »

Update 8/10/19

Unfortunately, the replacement surgery for Hayden's PD catheter was unsuccessful.  For now, he will go back to hemodialysis until we can get a meeting with the surgeon to talk about his PD catheter.  At this point, I don't know if we will get to Continue Reading »

Vickie Olson/Cody Jake Annual Golf Tournament 7/20/19

32 teams came out to support the Vickie Olson/Cody Jake golf tournament today.  COTA for Hayden M was honored to be the recipient on Hole 2.  We all had a great time taking a break from dialysis and Childrens Mercy. Continue Reading »

Hayden Represented on Safari

How cool is this?  If you look closesly, the man sitting among the lions is wearing a TEAM HAYDEN bracelet.  What a background!  One of Steve's co-workers is on safari, Heaviness, is the man in the picture.  He is the tracker on the game Continue Reading »

Update 7/11/19

Hayden is back at Children's Mercy Hospital with high blood pressure and a GI bug.  They have run several tests, but nothing has come back positive. Hayden continues to get hemodialysis on Monday, Wednesday, and Friday at CMH dialysis clinic.  He Continue Reading »

Moving Forward

Hayden was released from the hospital this afternoon after getting to spend a couple hours with his friend Elian.  We will be staying at the Ronald McDonald House and Hayden will have dialysis on Monday.  Hayden is still pretty sore but he is such Continue Reading »

KSN News

If you missed Hayden’s story on the news last night.  Click the link below.... Continue Reading »

Hayden on the News!!!!

Watch Hayden’s story tonight on KSN 3 @10 P.M Continue Reading »

7/2/19 Dialysis

Hayden made it through his first dialysis treatment today.  He is still in quite a quite a bit of pain, but has a pain pump.  We are hopeful as time goes on, the pain will subside.  Please be in prayer for pain and rest for Hayden and rest for Continue Reading »

7/2/19 Dialysis

Hayden made it through his first dialysis treatment today.  He is still in quite a quite a bit of pain, but has a pain pump.  We are hopeful as time goes on, the pain will subside.  Please be in prayer for pain and rest for Hayden and rest for Continue Reading »

Night Stats 7/1/19

A big thanks to everyone who participated and posted their pictures for TEAM HAYDEN day. While Hayden isn’t up to looking at all the photos tonight, we will look at them tomorrow. Hayden will get Hemodialysis tomorrow so be praying for him to Continue Reading »

Complete

Surgery is finished and Hayden has been moved to recovery.  Details to follow. Continue Reading »

NEPHRECTOMY STARTED

They have started the surgery for the nephrectomy. (11:00 A.M) Continue Reading »

IN SURGERY

Hayden was just taken back for surgery (10:00 A.M.).  Surgery should last 5-6 hours Continue Reading »

TEAM HAYDEN DAY 7/1/2019

Tomorrow is the BIG DAY!  Hayden will report at Children's Mercy Hospital at 7:45 A.M. for his nephrectomy (removal of the kidney).  As part of Team Hayden Day, please wear your shirts and post a picture on Facebook tagging COTA for Hayden M Continue Reading »

NEPHRECTOMY

Nephrectomy: the surgical removal of the kidney.  Monday, July, 1, 2019. Please be in prayer for Hayden, Steve, Crystal, and the whole team at Children's Mercy as they prepare for this day. Continue Reading »

Day 6: Give Kids The World

Day 6. Final day of the DreamFactory wish. It definitely was a trip to remember as the boys laughed and made some special memories. The last day was spent at Give Kids The World (GKTW).  The boys swam, participated in a pool party, and had free hot Continue Reading »

Day 5: Hollywood Studios

Day 5: Hollywood Studios. A day of Indiana Jones stunt show, meeting Buzz, Wood, and Jesse.  Previewing Toy Story 4.  Riding the Rockin' Roller Coaster, Star Wars and Toy Story rides. Ending the day with Best Friend pool time!   Continue Reading »

Day 4: Animal Kingdom

This park did not dissapoint.  Hayden loves animals, so the jungle safari was a hit!   His favorite ride of the trip "Avatar", was so good, he had to ride it twice. Hayden and Preston were picked to part of the Lion King show.  Super fun!  Continue Reading »

Day 3: Universal Studios

Hayden's Dream Factory trip continues with Day 3 at Universal Studios!  This was a day for the boys! Hayden loved the simulator rides.  Harry Potter, Spider-Man, Transformer and the Fast and the Furious rides were favorites.  He got to meet Continue Reading »

Day 2: Aquatica and Give Kids the World

The boys had a great time going around the raging river, wave pool, tackling slides, playing in awesome sprinkle park and of course enjoying Dip-n-Dots. Continue Reading »

Day 1: Magic Kingdom

Day 1 of the Dream Factory trip was spent at Magic Kingdom and was extremely HOT!!!  It was a day for Space Mountain, Astro Blasters, Seven Dwarfs, meeting Stitch, trading pins, and enjoing a Dole Whip! Continue Reading »

Day 1: Magic Kingdom #dreamfactorykc

9 Photos

Dream Factory Trip

Hayden is headed to Disney World!  The wonderful and amazing folks at Dream Factory have been working for months to make Hayden's wish to go to Disney World with is best friend Preston come true!   This past weekend Steve, Crystal, and Hayden met Continue Reading »

Dream Factory Trip

3 Photos

Summer Plans

Summer plans have been established, dates have been set, and all systems are a go.  The biggest update is that Hayden's nephrectomy (surgically removing the kidney) will be July 1st .  This will take place in Kansas City at Children's Mercy Continue Reading »