We have had several people asking for an update and I can’t believe it has been three months since I updated last. 

 

Let’s start with life as we know it.  Hayden is going to school five day’s a week at Cornerstone Classical School.  We are thankful for the staff there that helps make sure Hayden is ok day to day.  We are doing dialysis at home six nights a week.  This past couple of weeks Hayden has struggled with low BP’s.  We will go to CMH next Friday to see what we can figure out.

 

As far as transplant news.  We are hopeful Hayden will be listed on the transplant list as active in October.  We got news a few weeks ago that Hayden’s DSA’s are not cooperating.  So long story short we could be looking at a long wait on the transplant list.  None of us have a crystal ball so we will just take one day at a time and see what happens. 

 

Hayden is off all of his immunosuppressant meds and seems to be feeling the best he has felt in a long time aside from the BP’s giving us fits. 

 

Thank you all for the encouraging words and prayers. 

 

Crystal