Our Story
Jen Weber, an attorney and musician in Indianapolis, IN, was diagnosed with Cystic Fibrosis at the age of 2. Cystic Fibrosis damages many organs of the body, primarily the lungs. After 7 years on oxygen, Jen received her first double lung transplant on January 10, 2010 at Indiana University/Methodist Hospital at the age of 37. After years of not being able to breath well and pulling around a heavy green...
Continue Reading »Updates
November reflections—milestones and hoops
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It’s November and Jen is nearing ten months “après-transplant”. Things are progressing as expected, which gives us a chance to reflect on a few milestones: In late October,... Continue Reading »
One Year Update (plus 2 months)
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Jen celebrated her one-year transplant anniversary at the end of January and was rewarded with a trip back to Duke University Medical Center for a check-up with Dr.... Continue Reading »
9-Month Update and Hello Cello
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Jen just returned from a recent trip to Durham for her 9-month post-transplant checkup, joined by her mom Debbie from Florida. Her lungs are holding steady and healing... Continue Reading »
Six Months Post-Transplant & Summer in the City
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It’s hard to believe Jen celebrated six months post-transplant in July! She returned to Durham for a two-day clinic visit at Duke where she saw her surgeon Dr.... Continue Reading »
Home Sweet Home!
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“There’s no place like home!” This was famously declared by Dorothy in The Wizard of Oz and Jen can now attest to this sentiment whole-heartedly. How? Because she... Continue Reading »
Rehab and Whirligigs
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As Jen continues to build up her strength, she has her sights set on returning home to Indianapolis. In the meantime, she’s making the most of her time... Continue Reading »
Quiet Recovery
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Jen is working hard at what we’re referring to as the quiet part of her recovery. The updates may not be flashy, but Jen is quietly improving her... Continue Reading »
Post-transplant progress
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Jen had another busy week with her post-hospital transplant recovery. The pulmonary rehab team continues helping Jen make progress building her lung capacity and overall strength. An important... Continue Reading »
7-week update and Thank You
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It's been 7 weeks since Jen's transplant. There have been a few bumps in the road and some deep chuck holes to navigate. There have also been wins... Continue Reading »