Our Story

Mary Ashley was born with Congential Nephrotic Syndrome.  She was fortunate enough to recieve a kidney transplant at 20 months of age that saved her life!  However, 10 years ago a surgery that was intended to help her ended up causing her to reject that kidney.  She began dialysis at the age of 9 and has been sustained by this 3-5 days a week ever since. She has had over...

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Updates

Mary Ashley Update 10/4/22

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Mary Ashley Update 9/30/22

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Cupcake is joining the party ! MaryAshley’s labs are improving and output is improving! Woot woot. Her doctor called last night and said NO dialysis today. We will... Continue Reading »

Mary Ashley update 9/21/22

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Her comfort level is improving some and her blood pressure has stabilized on oral meds and she is having some output from the kidney. Unfortunately, her labs related... Continue Reading »

Transplant Day

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This is captured by Mary Ashley’s awesome teacher yesterday and her post. There are pivotal moments in your life when you get to be part of an intimate... Continue Reading »

Transplant Day Update

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Mary Ashley Blog Update

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We are still waiting on definitive dates for treatments in LA due to insurance approvals pending. She had a bad night on dialysis Wednesday and dropped her blood... Continue Reading »

Update 7/15

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MaryAshley update: after much discussion and thought with doctors, friends, family, God, and MaryAshley, MA made the decision that she wants to go back to LA and give... Continue Reading »

Mary Ashley Journey to Los Angeles

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For nearly 10 years we have been doing everything in our power to find a kidney for Mary Ashley.  Due to her very high antibody levels, she has... Continue Reading »

Mary Ashley’s birthday

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   We are so grateful to celebrate another birthday with MaryAshley.  There are so many moments we were not sure she would be here at 18, but she... Continue Reading »