We are incredibly overwhelmed in the best way by all the love being shown to Evelyn for her birthday. Thank you to every single person who has sent...

Happy 6th Birthday to my sweet Evelyn! You are such an inspiration to everyone around you. Your strength, bravery, and determination amaze me every single day. At the...

Last night, Evelyn developed Premature Ventricular Contractions (PVCs) — early, irregular heartbeats coming from the lower chambers of her heart that interrupt her normal rhythm. In her case,...

We’ve had a lot of big updates over the last 24 hours, and while none of this feels easy to say, we wanted to share where things stand....

We wanted to share another update on Evelyn as we head into the next couple of days: The team met today to discuss next steps. Right now, we...

We got results from Evelyn’s latest echo today, and I want to share an honest update. Her heart function has gotten worse. The main pumping chamber is now...

May 3rd will always be Evelyn’s “Cheat Death Day.” I wanted to share this a couple days early, because it’s a part of her story that shaped everything...

All smiles with her new backpack and officially ditched the IV pole! One downside is she still has to carry her heavy telemonitor, so we’re figuring out the best...

Evelyn and I were outside, enjoying the weather, blowing bubbles, just trying to soak up a normal moment. And then Evelyn started to get quiet and tear up....

No big updates over the last week, just life happening in the middle of the waiting. Over the weekend we celebrated little brother turning 3, and in just...