Gillian had her tube removed 1 wk ago and has been loving the freedom of having that gone. The last few days have been filled with a new type of pain in her left upper quadrant.
She has been having some pretty intense pain the last few days and has needed more pain meds than usual. Last night they were not doing the job though, she woke me up at 1am and we went in to the ER at about 1:30. They started with IV fluids and morphine. It lasted about 2 hrs before she needed more so they did an and x-ray. Her belly looked a little distended so they did a CT. We waited prob an hour or 2 before the ER Dr came in and told us she had a closed loop small bowel obstruction. It was a complete shock, we did not expect them to see anything! They were rushing to get her to Primary Children’s Hospital in SLC because it is cause for emergency surgery. My dad and brother came and gave her the sweetest blessing before we left. They placed an NG tube before leaving and would not let me drive her, so I followed the ambulance to the hospital. We arrived and were in the ER for another 5 hrs before she got a room😖 about an hour after they rushed us here the transplant team came to let us know that they have been in contact with her transplant surgeon, Dr Nathan. He wanted the CT reread here by a pediatric radiologist, and someone a little more familiar with the TPIAT surgery. She made minimal improvement after arriving. They drained the contents from her stomach and are planning to do a small bowel series this evening, where she drinks contrast and they watch it move through her bowel, to see the obstruction and how severe it is. The hope is that this bowel obstruction will continue to fix itself without any surgical intervention. Thank you for the continued, love, support and prayers for my sweet, warrior Gillian!! 💜💜💜