Our Story
One day our 1.5yr old son, Jack, came home pointing to his tummy and saying “hurt.” When we pressed on his belly he shrieked in pain and we noticed it was a bit distended and firm. We called our pediatrician who said it was constipation, but we insisted on coming in to get checked. The pediatrician on call said it was constipation and put us on a “clean out” regimen....
Continue Reading »Updates
Close surgery
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Jack just went back in for closure surgery (again) this morning. Little guy just went back for surgery at 10a. Super happy this morning! Continue Reading »
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Jack's care team met on Friday and noted that although there is a clot, Jack's body has grown collateral veins around the clot to handle the blood flow... Continue Reading »
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Jack’s venogram is complete and they were able to confirm that his Portal vein is partially clotted so his transplant and liver teams will get together for a... Continue Reading »
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Jack's venogram (test to look at veins, esp portal vein, under anesthesia) is tomorrow - we don’t know when yet. Hopefully we will get some answers soon! 💛💚 Continue Reading »
Jack Update
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Jack's procedures were postponed until next week. Still in good spirits with lots of energy but still working on getting over the chemo dip! #jackstrong 💛💚 Continue Reading »
Jack Update
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Jack had a CT under anesthesia yesterday to try and find the source of the blood in his stool (it happened again on Tuesday). The scan may have... Continue Reading »
Jack Update! 💚💛
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Jack's tests, X-ray & CT scan all came back clear, so unsure cause of blood in BM (it lessened in PM). Now, monitoring & an ultrasound tomorrow. Jack... Continue Reading »
Jack update
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Jack has hit his chemo dip (his last one!). His counts are low and he’s been getting transfusions (blood platelets, etc) but still has been super playful and... Continue Reading »