Today was simply a good day! It was hard work & training to get here…This is JUDE smiling with the GI nutritionist!!!! GOD is GOOD! ?He gained and...

Fantastic Friday! Judes labs were good! Jude gained some weight, praise God! Next round of liver labs TuEsday…Home Sweet Home!Now need to get used to new normal &...

Good morning wonderful Wednesday! We woke up in Manhattan in my bed! Jude, Zane & the SnORing dog, LUCAS, had the best night of sleep at home in...

Discharged! Hopefully, all the hopes! The plan is transplant clinic this Friday & no bad surprises…(initially the HOPE was to return to Manhattan the 29th, that is definitely...

As of today during morning rounds, Jude was finally fully taken off his 5-10 day fasting orders!!! Jude told his child therapist Dr. Wassom today the hardest part...

Jude received the best possible medicine, so did I!!!!

Not the darkest day, definitely not the brightest day. Medical update 1st. •Enteric tube terminates within stomach. •Right upper quadrant Billary stent unchanged. •no free air, previously noted...

Today we are being tested. I messed up by telling Jude we have an easy day, JUST CLINIC (meaning a doctor visit only). Jude is now down to...

Amelia Knopp met Jude after his morning labs, with some very special surprises & much needed support about taking yucky medicine

Guess who is getting discharged!??!! For the past 48 hours they have been training me to care for Jude at “HOME” we are renting an airbnb for the...