Blog

Hooray for Transplant Day

We got to join Kennedy around 10 am this morning. Lots of people still checking in and keeping a close eye. Technically speaking everything went very well. Just...

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Transplant Time

The Tomsche’s got the call that there is a match for Kennedy. She is currently admitted to the hospital and ready for the transplant to happen at 11...

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A Day in the Life Part 1

We thought it'd be helpful to do some "day in the life" posts to understand the implications of Kennedy's genetic disorder. If any of you are like us (Nick...

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Another Trip to the Hospital

Kennedy unfortunately had to be admitted to the hospital on Tuesday. Her ammonia had been a little off here and there since the previous week, and was over...

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Switched to Priority Status

Hello! We wanted to post an update to let you all know that Kennedy has been moved to priority status on the transplant list. She is now listed...

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