Our Story

Lincoln is the happiest little boy with the biggest smile who received a liver transplant in July of 2024. At 5 weeks old, he was diagnosed with biliary atresia, meaning he was born with no bile ducts and had no way to release bile from his liver, causing cirrhosis. A Kasai procedure was done to attach his intestines to his liver to allow bile to flow out. However, it was...

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Lincoln Hughes

Trinity, NC

Transplant Type: Liver

Transplant Status: Transplanted

Goal: $50,000.00

Raised: $15,797 of $50,000 goal

Raised by 30 contributors

Updates

Post-Op Update

Posted

Last night was a little rough in terms of pain control. Originally, Lincoln was going to get an epidural since this was such a big surgery, but his... Continue Reading »

Another Surgery…

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It’s been almost a month since Lincoln got his biliary drain removed. Labs were so-so in the beginning as we were fighting rejection, but then started to look... Continue Reading »

Biliary Drain Update

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It’s been about a month since Lincoln got his biliary drain placed. He was doing really well with it and adapting to life with the drain was honestly... Continue Reading »

Bile Drainage

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Lincoln was scheduled to get a percutaneous transhepatic cholangiogram (PTC) yesterday to determine if his bile ducts were blocked. This would explain why Lincoln’s liver numbers have remained... Continue Reading »

Liver Biopsy

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Lincoln’s labs started looking a little wonky last week, so some medication changes were made and labs were redone this past Wednesday. These results showed little improvement, so... Continue Reading »

Birthday at the Hospital

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Well, Lincoln’s in the hospital again. 2/9 at 4am, Lincoln started fussing and we noticed he was warm. His temperature was 101.9, so we gave some Tylenol and... Continue Reading »

Infection Update

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We are going home! Lincoln’s blood cultures have remained negative and based on his chest x-ray, he was diagnosed with pneumonia. It was weird to get this diagnosis... Continue Reading »

Infection

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Yesterday afternoon, Lincoln started being extremely fussy and grunting as he was trying to sleep. At first, we thought maybe he was trying to poop, but it kept... Continue Reading »

Outpatient IVIG

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Today Lincoln is spending a few hours in the hospital getting an IVIG infusion. He’s been low in IgG before, but that was related to his chylous leak... Continue Reading »