My’s blood sugar was high for the majority of the night. I gave them a bolus around midnight, and that only brought it down for like 30 minutes before it went climbing again. So I didn’t sleep. I thought they were sleeping, but turns out they were having trouble. They had been in pain all night, and woke up still in pain and asking for Tylenol.

We decided to spend the afternoon at the Art Museum. Upon entering the first room I was looking at a painting and My just kept saying “Mama…Edward…look at Edward!” It was a huge tapestry of bedazzled sorts of Edward Cullen, the sparkling vampire main character of the Twilight series. It was amazing and hilarious. The garlic… omg. We laughed, the girl next to us was laughing. (In the movie Edward tells the female main character, “This is the skin of a killer, Bella.” as his skin glitters in the sunlight. Lol. Hence today’s title.) Although he was fully covered by heads of garlic I cut the photo down to keep it appropriate for the blog lol.

We went to make breakfast, so they could take the rest of their meds too. I got everything out, and for some reason got the main ingredient last. It was empty. Gah! Luckily, the car keys are hooked to the diabetes backpack, so away we went. We headed for the grocery store, but saw a restaurant I had saw on Yelp the day before. By the time we reached the restaurant it was full on brunch time again. My picked something low carb which made a proper bolus quite a bit easier. However, we did realize that in the hullabaloo of cleaning up the kitchen, I forgot the brand new food scale (and she gone forever now, sadness). With sugars in check we hit a couple of shops next door, and My got some back to school makeup and snacks for later.

My is sore in some pain and tired today after our running around. We grabbed some leftovers in the dining hall and retired to our room at the Ronald McDonald House for the night at 4pm. My’s been in bed since just chilling. Not sleeping, but trying to rest their little body. I really hope it gets them back to zero pain. I decided to make the most of my time. I pulled out 5 weeks of everything that has accumulated in this room. I have an entire suitcase of prescription medication and medical supplies. I’m not even kidding you, an entire suitcase. There’s another suitcase of Mylin’s gifts, art supplies, figurines, and other goods they have collected and been given since arriving. We also have two carry-ons. One has all of Daniel’s clothes he left behind (since we still aren’t if sure he will have to fly back or not), and the other has… well honestly I couldn’t even fully tell you at this point but I think it’s our Apple TV, Nintendo switch, some food, some bedding we brought from home, a soft cooler, and a bunch of other odds and ends. My brain is mush. My and I both have a “personal item” backpack with our clothes, iPad, and snacks. Lastly My also has their diabetes bag. I am hoping we don’t run into any issues with TSA (we have a boat load of needles, pills, and all kinds of things that are going to flag that x-ray machine). I plan to ask for paperwork at our endocrinology appointment tomorrow. I also have to ask for paper work and whatever else we will need for returning to school.

After spending a heck ton of time cleaning out and cleaning up our room, it was time to hit the kitchen. I cleaned out our dry storage locker, the fridge, and the freezer. I had a decent amount of food that I donated to the “free” fridge and freezer areas. After cleaning the room, I was also able to donate a bunch of fidgets to the front desk that I had bought for Mylin. I feel like Mylin went from not being with it enough to play with fidgets, to wanting to do something more than play with fidgets in like two seconds.

I’m really hoping they tell us after our Endo appointment that we’re free to go. That’s why I did all the move out stuff today. I am ready to get outta here. Let’s go home! Still waiting to hear what they found out about getting an appointment in SD to get the stomach tube out. Finger crossed!