Our Story
Meet Riley! Riley suffers from chronic hereditary pancreatitis and visceral hyperalgesia due to a SPINK-1 gene mutation. She had her first attack when she was 5 years old. She has been hospitalized countless times over the past 11 years and 8 times just this past year. Each hospitalization lasts 1-3 weeks. She really misses attending school in person and being able to hang out with family and friends. Riley struggles...
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Harvesting the Islet Cells
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A photo of her duodenum, pancreas and spleen. The other photo is how they harvest the islet cells from her pancreas. They actually break down the pancreas slowly... Continue Reading »
Stronger every day!
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Riley is getting stronger every day! She is able to sit in a chair twice a day for an hour which is huge. GJ tube feeding at a... Continue Reading »
Riley has been transplanted!
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Riley had her transplant yesterday. She had a rough night last night, but is able to sleep today for the most part. Riley required a blood transfusion due... Continue Reading »
Riley
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