Our Story

Meet Riley!  Riley suffers from chronic hereditary pancreatitis and visceral hyperalgesia due to a SPINK-1 gene mutation.  She had her first attack when she was 5 years old.  She has been hospitalized countless times over the past 11 years and 8 times just this past year. Each hospitalization lasts 1-3 weeks. She really misses attending school in person and being able to hang out with family and friends. Riley struggles...

Continue Reading »

Riley Aguilera

The Dalles, OR

Transplant Type: Islet Cell

Transplant Status: Transplanted

Goal: $75,000.00

Raised: $6,544 of $75,000 goal

Raised by 35 contributors

Updates

Harvesting the Islet Cells

Posted

A photo of her duodenum, pancreas and spleen.  The other photo is how they harvest the islet cells from her pancreas.  They actually break down the pancreas slowly... Continue Reading »

Stronger every day!

Posted

Riley is getting stronger every day!  She is able to sit in a chair twice a day for an hour which is huge.  GJ tube feeding at a... Continue Reading »

Riley has been transplanted!

Posted

Riley had her transplant yesterday. She had a rough night last night, but is able to sleep today for the most part. Riley required a blood transfusion due... Continue Reading »

Riley

Posted