July 9, 2022: Rose was 5 1/2 months old and on her deathbed in the ICU desperately needing a liver transplant and waiting. Today is Rose’s 2nd liverversary. We still to this day do not know who the person is, but because someone selflessly signed up to be an organ donor .. Rose is alive. We get to have her here on this Earth with all of us. The second picture is Rose last year (still fighting for her life due to post transplant complications and receiving treatment for PTLD, a rare form of cancer that can affect organ transplant recipients). The third picture is of Rose this year.. 2 years post transplant. She is thriving, no longer needing therapy sessions multiple times a week to catch up developmentally, she doesn’t need any medical device or feeding tube or chest tube. She has a little brother to play with and the sun shines just a little brighter on all of us. The last photo is of Rose and Glenda just a couple of weeks after they both had their liver transplants. Glenda received the other part of the donor liver that Baby Rose did and they shared the donor liver. One liver saved two people and I imagine their hero angel donor saved many others. I hope we get to know their family one day. We’ve written them letters but have not heard anything back. Please ensure you are signed up to be an organ donor. Do it for Rose.
Rose Daniel
Nashville, TN
Transplant Type: Liver
Transplant Status: Transplanted
Goal: $125,000.00
Raised: $148,602 of $125,000 goal
Raised by 253 contributors
Thank you for sharing this update on Rose and your journey. It put a smile on my face and a renewed pep in my step. It serves as a good reminder – there is so much to be thankful for! I am grateful for your vulnerability and willingness to share your journey with others. Unless your family member goes through a life-saving transplant, you may never hear about all of the ways a family is stretched thin, and barely holding on during a time when they aren’t sure if their child will continue to live. Your brave commitment to sharing your story has increased awareness, provided peace to others going through this journey, and attracted life-changing support for families in need. THANK YOU isn’t enough, but thank you! I will continue to follow and cheer you on from afar. Please be encouraged to continue using your voice as a leader and advocate for transplant families!
Warmest regards,
Ryan Gallagher
Executive Director of Development
Children’s Organ Transplant Association (COTA)