Today was better overall and very busy. Still dealing with some headache and nausea, but they removed a pain med that was causing this issue, and that seems to have improved. He did not have an appetite throughout the day, but did request Minsky’s for dinner and ate two pieces! Our day consisted of:

Surgeon

Nephrology Team

OT

PT

Therapy Dog

Child Life Specialist

Echocardiogram

Trip outside in the wheelchair

Transplant education

Lego building

A lot going on, but making the steps to get Jake home. All of the meds he is taking are in a constant balancing act. They are so important, but come with a lot of side effects too. Jake was definitely more himself today, which I love to see! May get discharged on Friday, if things continue to look good!

– Shelley