Our Story

(photo by Stacey Houston Photography) COTA for our STRONG Savanna Wrobel Our strong Savanna has endured a lot in her short life. She came early on June 24, 2020, at 35 weeks and 3 days. Because she was born premature, she was taken right from our arms and went straight to the Neonatal Intensive Care Unit (NICU) at Northwest Community Hospital. After a couple days, the NICU doctors noticed that...

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Updates

Savanna Update 2023

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It’s been a while since we posted on here. Overall Savanna is doing really well. Even when she is “healthy”, we still seem to always be at doctor’s... Continue Reading »

3 years old!

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Happy 3rd Birthday Savanna!

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Happy Birthday to our mermaid, unicorn, dinosaur, rainbow, volcano loving, June 24th firecracker and now an official Threenager!  Savanna, the last three years have been a rollercoaster, but... Continue Reading »

Bile Drain Update

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They have confirmed that they think that Savanna has a Biliary stricture that is causing her elevated numbers.    They would like her to come in for a... Continue Reading »

Savanna’s 3rd Birthday Party!

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Thanks to everyone who was able to come to Savanna's 3rd birthday (a week early)! It means SO MUCH to us/her to be surrounded by those who LOVE... Continue Reading »

Wonky Liver Numbers – Update

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UPDATE! The nurse just called and said the doctor who is working today said she thinks there is a "stricture" but they want to review the images with.... Continue Reading »

Wonky Liver Numbers

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Savanna went in for an MRCP today (kind of like an MRI for your liver), but she had to go under since you can’t really tell an almost... Continue Reading »

2 years Old!

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Liver Biopsy

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Savanna’s new lab numbers are in: ALT 314 (274) AST 130 (143) Bilirubin and GGT remain normal.   ALT is what they pay the most attention to since... Continue Reading »