It’s been a while since we posted on here. Overall Savanna is doing really well. Even when she is “healthy”, we still seem to always be at doctor’s...

Happy Birthday to our mermaid, unicorn, dinosaur, rainbow, volcano loving, June 24th firecracker and now an official Threenager!  Savanna, the last three years have been a rollercoaster, but...

They have confirmed that they think that Savanna has a Biliary stricture that is causing her elevated numbers.    They would like her to come in for a...

Thanks to everyone who was able to come to Savanna's 3rd birthday (a week early)! It means SO MUCH to us/her to be surrounded by those who LOVE...

UPDATE! The nurse just called and said the doctor who is working today said she thinks there is a "stricture" but they want to review the images with....

Savanna went in for an MRCP today (kind of like an MRI for your liver), but she had to go under since you can’t really tell an almost...

Savanna’s new lab numbers are in: ALT 314 (274) AST 130 (143) Bilirubin and GGT remain normal.   ALT is what they pay the most attention to since...

We had a great birthday party celebrating with Dory, Nemo, Bluey and friends!   Savanna LOVES when you sing happy birthday!   She also LOVES cake!

Savanna has been really active and learning new things over the last month!  She is practicing putting shoes on and zipping her coat!  She is also talking a...

Today Savanna is 21 months old! We are so humbled to announce we have surpassed 80k for COTA for Savanna STRONG!!!   There are many days we are overwhelmed, beaten...