Our Story

Arden was born in 2007 with Hypoplastic Left Heart Syndrome, meaning only half of her heart fully developed. She has undergone nine surgeries, four of which were open heart surgeries. For the last eleven years, Arden has been able to live a normal life with the exception of extra doctor appointments. In July 2021, Arden had a heart catheterization. At this time, the doctors also did a liver biopsy. Because...

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Updates

January 11, 2023 update

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In December, we celebrated Arden’s first heart transplant anniversary. What a year this has been! The first six months were the hardest. It became much more manageable as... Continue Reading »

May 4, 2022 Update

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Arden continues to thrive with her new heart. She goes to her follow-up cardiologist appointments once a month. As her new heart has acclimated to her body, it... Continue Reading »

Back to School

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Yesterday, Arden had her regular cardiology check-up. She is doing so well that now she only has to see the cardiologist once a month. Her doctors continue to... Continue Reading »

Heart Catheterization Results

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On Thursday, Arden had a heart catheterization. The doctors do this routine cath after transplant to assess the new heart's function. Everything went smoothly during the cath, and... Continue Reading »

Life at home

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Here is an update on what we have been up to since we arrived home. Arden went to the hospital for three scheduled appointments during our first week... Continue Reading »

January 28, 2022 – Day 48

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We are going home! We are waiting on discharge medications and final instructions, and then we will be on our way by early afternoon. It has been a... Continue Reading »

January 27, 2022 – Day 47

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Today, the doctors are removing the chest tube! Tomorrow morning, Arden will have another chest x-ray. If the x-ray looks good, they plan to discharge her sometime in... Continue Reading »

January 25, 2022 – Day 45

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Arden is strong and healthy enough to go home, but she is still in the hospital because of the chest tube. The doctors decided to try something new... Continue Reading »

January 20, 2022 – Day 40

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Day 40. I'll just let that sink in—forty days in the hospital. There haven't been a lot of changes since my last update. Arden is still in an... Continue Reading »